Important legal notice
1 . Name of the processing
Analysis tool of the Monitoring and Assessment Framework for the European Innovation Partnership on Active and Healthy Ageing (MAFEIP)
2 . Description
The European Innovation Partnership on Active and Healthy Ageing (EIP on AHA) is a European Commission led policy initiative to address the challenges of demographic change in Europe. For monitoring the health and economic impact of the social and technological innovations carried out by more than 500 stakeholder's groups ('commitments') participating in the EIP on AHA, a generic and flexible web-based monitoring and assessment tool was developed. Although initially designed for EIP-AHA purposes, MAFEIP Tool is technically flexible, user friendly, and can be applied to any decision-making process dealing with similar topics (within or outside EIP framework).
The "Analysis tool of the Monitoring and Assessment Framework for the European Innovation Partnership on Active and Healthy Ageing (MAFEIP)" is an analytical tool which offers stakeholders involved in the EIP on AHA the possibility to assess the impact of their innovation in terms of health outcomes (health related quality of life) and resource use. The European Commission is interested in estimating the overall impact of the EIP on AHA on its main objectives (mainly Healthy Life Years expectancy and sustainability of health and care systems), but beyond, the European Commission is also interested in providing further users (beyond EIP circle) with MAFEIP assessment tool. As mentioned above MAFEIP Tool can be used as a support to decision-making process for similar topics in any institutional context.
The tool contains information on the baseline all-cause mortality and population size of each of the EU member states, except Croatia (Austria, Belgium, Bulgaria, Cyprus, Czech Republic, Denmark, Estonia, Finland, France, Germany, Greece, Hungary, Ireland, Italy, Latvia, Lithuania, Luxembourg, Malta, the Netherlands, Poland, Portugal, Romania, Slovak Republic, Slovenia, Spain, Sweden and the United Kingdom). This data which was retrieved from the Human Mortality Database for the year 2005 is used for all mortalities in the model (transitions to the death state). It can be adjusted to suit the target population, deteriorated health population and intervention effects using relative risks. The population size data can be used to calculate a weighted average for age and gender in the selected country and for the target population specified by the user.
The tool allows estimating health outcomes and impact on health and care utilisation, and calculating the cost-effectiveness of an innovation versus its respective standard care alternative. The European Commission is interested in estimating the overall impact of the EIP on AHA on its main objectives (Quality of Life and sustainability of health and care systems) and estimating the impact of other initiatives (beyond EIP) covering similar topics. The European Commission does not intend to use MAFEIP Tool in a competition spirit, to compare the innovations delivered in the Partnership on the basis of their cost-effectiveness as standard care scenarios will differ for each user and each innovation. Furthermore the outcomes generated by the tool will not be made publicly available. Lastly the European Commission is interested in improving MAFEIP Tool, in line with users' needs, on the basis on information related to users' feedback and experience.
The services provided by Open Evidence, S.L. in the framework of the MAFEIP project do not involve processing of personal data except those provided for user registration. Once the user is registered, all the information provided will be anonymized, unable to identify or associate to any individual.
After the registration, a login and a password to access the website will be provided. The User is responsible for the use and custody of both. Open Evidence, S.L. reserves the right to deny access to users who make fraudulent use of the website. The users will be responsible for keeping their access codes secure and confidential. The users must immediately notify Open Evidence, S.L. any breach of security regulations or any unauthorized use of their accounts of which they are aware.
The personal information collection and processing through the user registration in MAFEIP e-services is carried out for the following reasons: (i) to contact the user in the context of the project; (ii) to appropriately handle and process the queries, comments, complaints, and suggestions sent; (iii) to manage basic administrative tasks.
3 . Processors
Open Evidence, S.L.
4 . Automated / Manual operations
The information submitted will be processed using an automated, and where applicable, conventional processing system by Open Evidence, S.L.
5 . Storage
Personal data are stored on the servers of Open Evidence S.L.
6 . Comments
Purpose & legal basis
7 . Purposes
Ensure that only properly registered users can have access to the facilities they need.
8 . Legal basis and Lawfulness
As the processing is carried out in the public interest under the indicated legal basis the processing is lawful for the indicated purpose based in article 5(a) of Regulation (EC) 45/2001.
Articles 20 "Exemptions and restrictions" and 27 "Prior-Checking by the EDPS" are not applicable.
Registration and participation of data subjects are provided on a purely voluntary basis.
Data subjects and Data Fields
9 . Data subjects
The data subjects are the users providing personal information either by filling in the data collection forms included in the MAFEIP website, or by writing to the email addresses provided for this purpose
10 . Data fields / Category
- In particular the personal data provided by the users to register to the website for the services within the framework of the MAFEIP project are the following: Name, Surname, and Email.
- No data fields which fall under article 10 of Regulation 45/2001.
Rights of Data Subject
11 . Mandatory Information
In view of improving effective implementation, the privacy statement regarding MAFEIP Tool will be posted on-line in order to be accessible by data subjects.
12 . Procedure to grant rights
Name and e-mail address of the data controller (functional mailbox) will be provided in the privacy statement and e-mails referred to under point 2 above in order for the data subjects to contact her for any questions related to their rights.
13 . Retention
The time limit for storing personal data is fixed to max. 3 years starting from filling in the registration form on the internet, unless the Controller launches an update of the registrations, asking the Data subjects to update or cancel the stored information including their personal data.
14 . Time limit
The users may exercise the right to access, correct, challenge, or delete the information submitted by sending an email to: firstname.lastname@example.org or writing to: Open Evidence, S.L., Avenida Tibidabo, 39, 08035, Barcelona.
15 . Historical purposes
Anonymous data will be used for historical and statistical purposes after deactivation.
16 . Recipients
Data will only be accessible to internal authorized staff members of EC services and Open Evidence, S.L.
17 . Transfer out of UE/EEA
No personal data will be transferred outside the EU or EEA.
18 . Technical and organizational measures
Open Evidence, S.L. has adopted the personal data protection security levels required by the legislation in force, on the basis of the type of information processed. It has also implemented other additional technical means and measures available to it to avoid the alteration, loss, or unauthorised processing or access of the personal data submitted. Open Evidence, S.L. guarantees that it has adopted the appropriate security measures to guarantee the security and confidentiality of the information that you send us by Internet.
19 . Complementary information
As mentioned in the paragraph above, "2. Description" MAFEIP Tool is designed as an evolving tool and is expected to be improved in line with users' needs. Therefore, the European Commission expects users (EIP members and also others) to provide Open Evidence, S.L. with all relevant information on their user experience with a view to improving MAFEIP technicalities and functioning. Open Evidence, S.L. is entrusted with this specific analytical task and is entitled to collect and analyse user's information feedback accordingly.